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Author Topic: 15 tips to managing treatment side effects  (Read 4689 times)

Offline mtkto

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15 tips to managing treatment side effects
« on: March 20, 2010, 09:01:41 PM »
Fifteen suggestions to discuss with your physician for managing the most common side effects of combination therapy are outlined below:

1. Insomnia Getting a full night's sleep helps the body recover from physical and emotional stressors. Being fully rested lessens the side effects of fatigue, headache, fever, myalgia (muscle pain), irritability and insomnia. Talk to your health care provider; there are many medications available.
2. Hydration Keeping hydrated is helpful to counteract the drying properties of combination therapy. Keeping hydrated is advised to improve fatigue, headache, fever, myalgia and dry mouth. Hydration is key in helping lessen 'brain-fog'.
3. Nutrition Eating well-balanced meals helps the body bounce back from fatigue, headache, fever and myalgia. Small frequent meals are often helpful.
4. Exercise Engaging in regular exercise keeps your circulation going and thus helps prevent fatigue, headache, fever and myalgia. It has also shown to promote a sense of normalcy and well-being.  While on treatment,you may not be able to do what you used to be able to do but some exercise decrease loss of muscle mass.
5. Relax Taking a hot bath or using hot packs is recognized for helping relieve myalgia, decreases stress and aids in sleep hygiene.
6. Aches/Pains Taking acetaminophen (Tylenol) or NSAIDS can reduce fatigue, headaches, fever, myalgias or liver pain. However, dosage and safety considerations must be confirmed by your doctor since these drugs may place an additional burden on the liver.
7. Blood disorders Ribavirin is well documented for causing anemia, (low red blood cells). This causes more side effects of fatigue, shortness of breath, and feeling like a couch potato. A low white blood count neutropenia can interfere with your ability combat infection. Your health care provider will regularly do blood tests to check levels, but do not hesitate to contact them if you feel there is a problem.
8. Nausea/Indigestion Taking ribavirin with food and eating small, frequent meals helps ease ribavirin-related nausea. This is very important. Prochlorperazine (compazine) is a prescription medication which is used to stop nausea but should only be done under a physician's guidance. Take to your doctor about using one of the proton pump inhibitors (omeprazole, Nexium, Aciphex, Prevacid for example) for symptoms of indigestion or reflux. Include ginger in your day by drinking it in tea, ale or snacking on ginger baked goods to relieve indigestion and/or nausea.
9. Fatigue Interferon can cause fatigue. It is the most reported side effect. Consider treatment and ridding yourself of hcv your primary goal. Take care of yourself. Monitor how much you do and pace yourself. Fatigue is worsened by anemia. Interferon can inhibit thyroid function. This too can cause fatigue, malaise, dry skin and hair loss.
10. Caffeine Avoiding stimulants like caffeine at night can reduce insomnia and irritability.
11. Irritability/Anxiety Practicing relaxation techniques, such as taking a deep breath and counting to ten, can significantly help reduce irritability. Irritability is caused by treatment. Your family and friends can help you recognize when you may be showing signs of irritability or anxiety. Talk to your primary care provider. There are many medications available.
12. Depression Taking selective serotonin re-uptake inhibitors (SSRIs) have been proven effective in treating the depression associated with interferon therapy for certain individuals. The additional side effects of SSRIs and treatment guidelines must be carefully evaluated by your physician. If you have ever had a history of depression, anti-depressant therapy should be initiated prior to treatment. There are also other classes of anti-depressants.
13. Support Sharing feelings with friends, family or a support group can help many people cope with the irritability and depression often accompanying HCV therapy.
14. Hair loss Being gentle with your hair can help minimize hair loss. This includes not pulling on or braiding the hair, avoiding vigorous combing or brushing and only using natural (not harsh) hair products.
15. Mouth sores Avoiding hot or spicy foods minimizes mouth irritation. For those dealing with the side effects of a dry mouth or mouth sores, avoiding these types of foods is a must.

Some of these tips for managing side effects are easily accomplished at home while others require collaboration with your physician. However it is accomplished, reducing side effect severity helps people endure a full course of combination therapy, a feat that increases their odds of eliminating the Hepatitis C virus.

References:
www.clevelandclinic.org, Managing Side Effects of Hepatitis C Treatment, The Cleveland Clinic Department of Patient Education and Health Information, 2008.
www.hepatitis.va.gov, Clinical Manual: Interferon and Ribavirin Treatment Side Effects, United States Department of Veteran Affairs, 2008.
www.hepcawareness.net.au, Treatment Side Effects, Australian Hepatitis Council, 2008.
« Last Edit: March 20, 2010, 09:31:23 PM by mtkto »
*dx 1/09, *geno 1a  *vl 4.780,000; 
*bx 3/09,  2-3
*trmt 9/22/09; wk 20 -Undetectable;DONE! 8/24/10
RELAPSE 11/23/10
Round 2: 9/1/11 telapravir, peg, riba

Offline Terri O

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Re: 15 tips to managing treatment side effects
« Reply #1 on: March 20, 2010, 09:08:04 PM »
Very good suggestions Mtkto.  Thanks!  :)
Geno 3a
Tx started Oct 2009 ~und since week 2
Baseline VL 3.2 mil
SVR


What we mistook for a limit proves to be a horizon.

Offline Timothy

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Re: 15 tips to managing treatment side effects
« Reply #2 on: March 20, 2010, 09:53:13 PM »
That's awesome mtkto.  Nice and concise.

Thanks!  clp clp
 luv Tim
Contracted:1984
TX:09/23/09 - SOC+8wks Danaprevir
Week 1:VL 3950:Week 2:VL 122:Week 4 RVR
Week 24:Tx Complete
Week 12 Post Tx:Relapse
-------------------------------------
TX:07/10/11 - SOC+12wks Telaprevir
Week4: UND
Finished TX:12/24/12
06/25/12 Scheduled SVR Test.

Offline sharona

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Re: 15 tips to managing treatment side effects
« Reply #3 on: March 21, 2010, 12:48:36 AM »
muy bien!  clp
cirrhosis, previous decompensation/acute failure
Completed 2nd tx, 80 wks, 9/8/10
Relapsed

Offline learn2fly

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Re: 15 tips to managing treatment side effects
« Reply #4 on: March 21, 2010, 06:46:25 AM »
mtkto,
Thanks so much for posting the treatment of sx.  They are clear and concise and a great reminder whether new to treatment or in the process and forgetting all the things that could be helping a crappy day.
 luv
l2f
Dx  April '09   Genotype 2
AST 216    ALT 389    GGT 131
Baseline VL 2.2 mil
Started treatment Oct. 9/09
4 week VL - UND woo hoo
AST 61     ALT 78    GGT 76
4 week post treatment VL - UND
6 month post treatment - SVR

Offline Debbie Rae

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Re: 15 tips to managing treatment side effects
« Reply #5 on: May 06, 2010, 10:49:12 PM »
Mtkto I just saw this post for the first time tonight.  I've got a little insomnia going on and wish I felt more  {tired}

This is great info!  Thank you for taking the time to write it honey.  Nice job!   luv Debbie
"Life is like a box of chocolates..."  F. Gump

Offline MagickBalls

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Re: 15 tips to managing treatment side effects
« Reply #6 on: May 08, 2010, 05:42:03 PM »
Spoken like someone who would know, all to well...and did I say well....well done indeed  clp
Found out about having Hep C; Spring of 2008 / Geno Type; 1a / Viral Count: 5.5 million  / Started Treatment: 01/17/09. Around my 6th week; UNDETECTABLE. Last shot (Pegasys 180 MCG / 0.5ML); 12/26/09. Finished pills; Ribavirin 600 MG - twice a day on 12/31/09. Achieved SVR status - Summer of 2010.

Offline Timothy

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Re: 15 tips to managing treatment side effects
« Reply #7 on: April 06, 2011, 10:00:38 PM »
bumping this topic for newcomers on tx.  Please check out the first post in this thread.
Contracted:1984
TX:09/23/09 - SOC+8wks Danaprevir
Week 1:VL 3950:Week 2:VL 122:Week 4 RVR
Week 24:Tx Complete
Week 12 Post Tx:Relapse
-------------------------------------
TX:07/10/11 - SOC+12wks Telaprevir
Week4: UND
Finished TX:12/24/12
06/25/12 Scheduled SVR Test.

Offline Decadence5

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Re: 15 tips to managing treatment side effects
« Reply #8 on: June 28, 2011, 10:44:02 PM »
Hey All, I remember reading a post about how much water per pound of weight I should be drinking per day to help avoid nasty side effects during treatment...can anyone refresh my memory on the ratio??
Genotype 1a, Stage 3
Started tx July 15, 2011
Tx = 24wks, Peg 180mcg./(Fridays), Riba 600mg X 2,
12 wks, Telaprevir 750mg X 3 (Naive).
Starting VL 800,000
Week 4  VL UND
Week 8  VL UND
Week 12 VL UND
Week 24 VL UND

Offline learn2fly

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Re: 15 tips to managing treatment side effects
« Reply #9 on: June 29, 2011, 07:57:30 AM »
Hi Decadence5
The recommended water consumption is half your body weight in ounces.  I was at 120 lbs when starting treatment so I insured I had at least 60 ounces of water a day but usually had more.
Hope this helps.
Take good care.
learn2fly
Dx  April '09   Genotype 2
AST 216    ALT 389    GGT 131
Baseline VL 2.2 mil
Started treatment Oct. 9/09
4 week VL - UND woo hoo
AST 61     ALT 78    GGT 76
4 week post treatment VL - UND
6 month post treatment - SVR

 


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Individualized treatment duration with peginterferon alfa-2b and ribavirin for 24,30, 0r 36 weeks in HCV genotype 1-infected patients with undetectable HCV-RNA early during therapy (INDIV-2 study) 090409_Essex_EASL.pdf
Causes and management of chronic hepatitis C in treatment experienced patients 767-3081-1-PB.pdf
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